I also had my first Botox treatment for chronic migraines a couple weeks ago. The first treatment isn't supposed to make a big difference in your migraines, and it hasn't. What it has done is weakened my neck muscles, making it harder to hold my head up. Then, all the other muscles that weren't paralyzed by the Botox are squeezing harder, causing a tension headache (that feels a whole lot like the early stages of a migraine.) So, it's kinda hard to sort everything out at this point. But I will go ahead and get the second Botox treatment in November as planned. In the meantime, I've had to start wearing my beloved Aspen collar again. It's only temporary though. The effects of Botox last 10-12 weeks for most people.
Otherwise, I don't have much to report. I'm taking the mast cell stabilizers, but not noticing a huge difference in anything yet. My stamina has been okay-not awesome. I've been frustrated with my level of consciousness some days. That really comes in waves, like most everything else.
I have to get a new psychiatrist, due to a change in our insurance. I'm hoping to find one that can help with my occasional sleep problems. I'm terrified to sleep away from home ever, because I had so much trouble sleeping on our last trip. And without sleep, all hope is lost. It is so key to my functioning with POTS. And a bad night's sleep also guarantees a migraine day. Unfortunately, our new insurance is pretty bad, so it may be difficult to find a good doctor among the few that accept the insurance.
I think that's all the news to report. Thanks for checking in!
