Dr. John Oro is a leading chiari expert that runs the Chiari Care Clinic in Aurora, CO. He has created a blog that keeps patients up to date on research. I've linked a few of his articles here. I think he is a brilliant doctor working hard to help with chiari education, awareness, and research.
This is Dr. Oro's explanation of why chiari goes unrecognized or ignored. It's a great article:
Chiari Times
He also wrote an amazing poem describing the difficulties a chiari patient encounters in life:
Chiari Times Poem
An amazing article about how cerebellar dysfunction may cause fits of rage:
Chiari Times Rage