Carolyn's Sick Journey

Living with chronic illness - Mast Cell Activation Syndrome - Chemical Sensitivity - Chronic Intractable Migraine - Ehlers Danlos Syndrome - Dysautonomia - Chiari Malformation - Cranio-cervical Instability - Functional cranial settling - Cranio-Cervical Fusions - Retroflexed Odontoid - Occult Tethered Cord

Friday, May 17, 2013

Great article on living well with chronic illness

http://www.psychologytoday.com/blog/turning-straw-gold/201305/12-tips-12-years-sick
Posted by Carolyn Medrano at 9:31 PM
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My Surgical and Diagnostic History (links to my website/archives)

  • 1: My Chiari Diagnosis
  • 2: My Decompression Surgery
  • 3: Post-Surgery
  • 4: My POTS Diagnosis
  • 5: Invasive Cervical Traction
  • 6: My Cranio-Cervical Fusion
  • 7: Tethered Cord Surgery

Anatomy of a chiari malformation

Anatomy of a chiari malformation

A Chiari MRI

A Chiari MRI

Chiari sites

  • Article: Cognition, Emotion, and the Cerebellum
  • Abstract: Cerebellum and Emotion Regulation
  • Abstract: Specialized surgery using color doppler ultrasound
  • Abstract: Trauma Causing Chiari Symptoms
  • My Medical Explanation: Chiari
  • All the best chiari research
  • Chiari Connection Articles
  • The Chiari Institute

Cranio-Cervical Instability

  • Fusion with Chiari Surgery
  • Article on the connection between Chiari and EDS
  • Dr. Menezes on Fusion Surgery
  • EDS, POTS, and TCS
  • Cervical Traction
  • Basilar Invagination

POTS sites

  • Video: A Demonstration of Dysautonomia
  • POTS symptoms and a video: a day in the life with POTS
  • Tilt Table Testing
  • Everything you need to know about POTS
  • Article on Living with POTS

Tethered Cord sites

  • Abstract: TCI article about Chiari and TCS
  • Treatment of Chiari with SFT
  • Results of SFT in 20 patients
  • Importance of time in the treatment of TCS
  • Congenital tethered cord syndrome in adults
  • What is tethered cord?

Ehlers-Danlos sites

  • So You Think You Have EDS
  • EDS, Classic Type
  • Abstract: EDS and Breathing Problems
  • EDS Today
  • Abstract: EDS and Urinary Problems
  • Abstract: Life threatening Complication of EDS
  • Abstract: EDS and Tooth Problems
  • Abstract: EDS and Neuromuscular Problems
  • Pain and Hypermobility
  • EDS hypermobility overview
  • EDS explanation

Extra Links

  • The Intractable Pain Patient's Handbook for Survival

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      • Great article on living well with chronic illness
      • What is Ehlers-Danlos Syndrome
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