For the first time, a national chiari event is being organized to raise money for chiari research and spread awareness. So far, 5 of the 50 states have confirmed walk sites for September 20, 2008. Several states have recently declared September to be Chiari Awareness Month. Illinois is not one of these states. There is no walk organized in Illinois yet. I'd love to help out, but I won't know what I can do until after my surgery and recovery. Nonetheless, this is a really exciting time for Chiarians! National recognition is coming. It just takes time.
http://www.conquerchiari.org/walk/CCWalkAcrossAmerica.htm
