I found this list of symptoms. It was a pre-surgical list I made in June 2008. Unfortunately, since then, I only had to add symptoms...not remove any. It's not perfectly organized anymore, because I had to add so many things. I'll have to fix it sometime. But, here's the updated symptoms list.
Headaches
constant pressure headache (pushing out around the skull)
facial pain through cheekbones
jaw pain--tires easily, making it difficult to chew
eye pressure/pain
Usually worsened by light and low sounds
migraines 3-5 days per week
Nausea/fatigue/sick feeling
every day after doing too much
some days after doing nothing
Back pain
lower spine, mid spine, neck, muscle spasms in neck and shoulders
Tachycardia
always when upright in mornings
sometimes during sleep (very infrequent)
heartbeat irregularities/arrhythmias
orthostatic intolerance
heart working extra hard and pounding
Low blood pressure
from standing (5 minutes still, 15 minutes walking)
spells several times a week--semi-conscious
dysregulation
Falling/fainting
fall several times a day
weakness
legs giving out
Heavy head
after holding head up for 30 minutes
Swallowing problems
trouble swallowing pills-need chin down, sometimes gets stuck
choke on food and water
water inhaled and throat closes
Wake up sweating and shivering
Bladder problems
early signs of loss of bladder control
urgency
frequent urination
feels like a constant need to urinate
Out of it/easily startled/confusion/difficulty concentrating/aphasia/
Sleep problems
difficulty staying asleep
Bone and joint pain
Skin sensitivity/allodynia
Poor proprioception
Painful tingling in heels
Orthostatic intolerance and exercise intolerance
Vertigo spells
Clumsiness/dysequilibrium/loss of balance/decreased reflexes
Pupil dilation
Muscle spasms
sharp pain and burning in shoulders
Temperature control problems/patches of goosebumps/chills/overheating
Episodes of cranio-cervical instability
vertigo
flushing
nausea
pounding heart
chills
