I wanted to share with all my blog readers a video that I made for my mom's church. The pastor was kind enough to ask for my input on how to handle the suffering of a loved one. It was emotional for me to write this piece, and a bit of a challenge to record. I was having a migraine and in a bit of a fog, but that mental dullness probably helped keep me from breaking down and sobbing near the end.
Please keep in mind, I can't set any universal standards for what you should or shouldn't say to someone you love. It's all so subjective. But having been sick this long, I certainly know what I have heard repeatedly for so many years, and what tends to rub me the wrong way.
Since I know mostly my family and friends will watch this, please know that even if you have said one or more of these things to me, it doesn't mean I took it the wrong way or that I'm mad at you. I know that all of these things are well-intentioned when they are said, and I would never hold it against someone that they didn't say exactly the right thing. Any and all support is truly appreciated.
Please keep in mind, I can't set any universal standards for what you should or shouldn't say to someone you love. It's all so subjective. But having been sick this long, I certainly know what I have heard repeatedly for so many years, and what tends to rub me the wrong way.
Since I know mostly my family and friends will watch this, please know that even if you have said one or more of these things to me, it doesn't mean I took it the wrong way or that I'm mad at you. I know that all of these things are well-intentioned when they are said, and I would never hold it against someone that they didn't say exactly the right thing. Any and all support is truly appreciated.
On the medical front, I have several doctors' appointments coming up which I am truly dreading. (I dread every appointment, because they make me sick for so long.) But please don't get your hopes up! I am going in with an open mind, but not expecting much to change. But I am open to any and all potential improvements, obviously.
As always, thank you for reading (and watching), and thank you for still caring after all these years.
