Okay. I would never do this. But when something works, it works.
I think you can tell how desperate my situation has been. Bedridden.
June recommended trying massage therapy, heat, and muscle relaxants for 2 weeks, before we do any scans, in case I strained a muscle and had spasms going on from overuse.
June was right.
But more unbelievable than the fact that muscle injury could have been causing my vast array of symptoms is the fact that I found a brand new massage therapist in a new city, and he gave me the most effective massage of my life. In the past, I've never had a massage with noticeable lasting results before. But this was a new kind of massage. He called it neuromuscular. It didn't hurt. It was very slow motion. I didn't know it could possibly help so much. When he told me the effects would be more noticeable and improving over the following 24, 48, and 72 hours, I smiled, but didn't really believe him. But I wanted to.
But then, he was right. It's only been 48 hours actually, but the pain in my upper back is drastically improved. And I believe that my crazy EDS muscles were pulling on my spine and irritating my nerves. Because other symptoms have improved too, especially the nausea.
I do have a migraine today. As soon as I see him again, I will ask if he can work more on my neck to try to help the migraine area more. But he has already given me such a huge gift.
So, I'd like to share his website with anyone who may be in the Milwaukee area...even for a day. Just go see him. I'd even travel from surrounding areas to see him if I didn't live here. His name is Stuart Blystone. From my experience, he knows what he's doing, and he can really help.
Here's Stuart's page:
http://www.milwaukee.massagetherapy.com/
I just wish that all of my Chiari/EDS/fusion friends could find a massage therapist like him.
Maybe one day I'll find a physical therapist that can be helpful like some of my friends have found.
But I'm certainly grateful for the help I've found. I'll let you know how it goes in the future.
(I am simply sharing my own experience, and this should not be seen as a substitute for medical advice. I'm also not getting paid anything to share this information with you. :))