The following site has a great list of Dos and Don'ts for dealing with a person living with chiari. If people would read this page, maybe they'd have an easier time understanding my struggles.
Dos and Don'ts
Also Dr. B wrote an explanation of craniocervical instability in EDS patients, the incidence of TCS, and information about the use of Botox in the fusion surgery.
Dr. B on CCF
