Monday, June 29, 2009

Bad Day

Well, it's been a week since I've last written. Is that a good sign or a bad sign? Neither, I guess. I might have been a little busier than normal. We had our Chiari meeting, but it was a very small (but friendly) group. My Uncle Jim is in town, which is very exciting. I met with a chiropractor last week. He's giving me a free initial evaluation and formulating a treatment plan. Don't worry, the plan involves absolutely NO adjustments of the spine. Not smart with Chiari, EDS, or Osteoporosis. He does want to try some energy healing. I don't believe in it too much, but he feels that he can reduce my body's pain reception, so I don't feel as much of this pain. Who am I to turn down the offer?

I'm also eagerly waiting for my appointment with Dr. Wilkin, the neurologist and pain specialist, on July 20...that was the earliest appointment there was.

I've been using a Thera Cane for trigger-point therapy. I like it. I'm glad I have the option of giving myself a massage, essentially.

I received the long-awaited packet of surgical reports from the hospital in New York. Unfortunately, they sent tons of papers, but none from my cranio-cervical fusion, even though I explicitly requested it. I'll have to start the long process of requesting those particular pages again.

I don't think I'll wait anymore to send the package to Dr. Menezes. I can send him the surgical report later. I just don't want to wait anymore, so I'll be getting the package together this week.

Today was a day off, because work is very slow this summer. But I would've had to miss work anyway, because it's been a VERY sick day. I haven't been able to get off the couch at all, except for bathroom trips. Otherwise, I'm totally stuck here. Even lying down, it's hard to get comfortable after being here all day. I've been nauseated, tired, out-of-it, crabby, and in lots of pain. I had a low BP spell where I was barely conscious and not able to move. My joints hurt, just laying around on the knees and hips hurt. And I have an ice pick over my right eye, in addition to all over head pain. It's hopefully peaking right now, at an 8 or 9. I haven't been able to eat much, and I have the feeling of a lump in my throat that makes me want to gag constantly. That also makes it feel like I can't breathe.

I want to buy a cane that turns into a seat, since my walker doesn't always fit in places, like restaurants. I've just got to decide which one to get, and wait a while, since I'm not allowed to buy anything else this month. There's a few on for around $20.

In my free, bored time, I've found something really fun to do. I signed up for a free 7-day membership of It has some really fun games to train your brain! I love it! I don't know what I'll do when my membership runs out. It's so addictive! I love all the different games.

Okay, back to dealing with overwhelming pain and sickness.